Sunday, April 14, 2013

My disability doesn't bother me.

So, yesterday I decided to wear my new Ypsilons braces and with that wear shorts. The weather in Vegas has been in the 80's and my GOD, I would be nuts not take the opportunity to wear shorts. As I was strolling along all day with my braces, I received plenty of stares. Some with a smile and some with an uncomfortable look. So that is why I decided to write this piece. And let people know that it's not polite to stare and/or point.

Why are people so uncomfortable staring at someone with leg braces? Instead, ask questions. Find out what happen and/or why. Questions don't bother me as much as those up and down stares. You are missing out on some great stories. And meeting people like the mom who has MS, or the guy with a missing leg, the kid next door in a wheelchair. You are missing out on finding what makes them strong and what motivates them.Your assumptions, believes, stares, judgements are hurting YOU not me. You are and will miss out on meeting some amazing people. I realize that some of the happiest, genuine people I have had the pleasure to meet and work with are those who are challenge. Why? Because they have learned to love and accept themselves. They have made peace with their past and have embraces whatever it is that makes them different.

My disability doesn't bother me, I'm not sorry. I'm only sorry it bothers you. So please don't tell me that you feel sorry!!! Why are you sorry??? Because my disability is more visible than yours? We all have disabilities. Some are physical, some are mental, some are emotional and some, some are social. What I mean with having a social disability is the problem people have with others. Whether is labeling someone disable and /or putting people in social, ethical, religious categories.

With that said. Enjoy your day and give yourself a chance to be inspired by those who are challenged. You just never know what you will learn. Be open to the opportunity to make a new friend.

Friday, April 12, 2013

Being away

Just wanted to apologize for being away this long. I have been working on a few things that have required my full attention. It seems like things are falling right into place and I am excited about all that is to come.

I will be doing my best to represent everyone that is affected by CMT and will make every effort to share my journey with all of you. I will have to go back and share my events as they have been happening.

As for today, it has been one of those days where the energy has been drained from my body. You know that feeling? It's not muscle aches, just fatigue and no energy to move around and do the everyday things. I had to talk myself into going to pick up my daughter and tap into my reserves.
Seriously, I very much dislike this type of days. As moms we have a billion things to do and sitting around is not one of them. I guess I should embrace days like this because it's the only time I get to sit around.

Enough of my complaining. I hope you are all doing better, since the weather is getting warmer. I know I have enjoyed and am enjoying 70's and 80's and not looking forward to full summer temperatures.

Well, until tomorrow. I will try to gather pictures of my events and will be posting more often.
Thank you for hanging around.

Virginia